Journal article
The Dyskinetic Cerebral Palsy Functional Impact Scale: development and validation of a new tool
K Stewart, J Lewis, M Wallen, N Bear, A Harvey
Developmental Medicine and Child Neurology | Published : 2021
DOI: 10.1111/dmcn.14960
Abstract
Aim: To outline the development and examine the content and construct validity of a new tool, the Dyskinetic Cerebral Palsy Functional Impact Scale (D-FIS), which measures the impact of dyskinesia on everyday activities in children with cerebral palsy (CP). Method: D-FIS content was informed by a systematic review of dyskinesia outcome measures, in collaboration with children with dyskinetic CP, parents, caregivers, and expert clinicians. The D-FIS uses parent proxy to rate impact of dyskinesia on everyday activities. Construct validity was determined by examining internal consistency; known groups validity with the Gross Motor Function Classification System (GMFCS), Manual Ability Classific..
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Funding Acknowledgements
The authors wish to acknowledge the valuable contribution to the following parents of children with dyskinetic CP, adolescents with dyskinetic CP, and clinical experts in the field of CP management: J Kelderman, J Kelly, D Kelly, R Shah, A Shah, S Wick, J Charlesworth, M Jordon, S Clifton-Bligh, L Conn, M Conn, Dr S McIntyre, Dr L Copeland, Dr M-C Waugh, N Smith, Dr S McCabe, C Brady, Dr J Rice, and Dr S Mohammad. We also want to acknowledge the Australian National Health and Medical Research Council-funded Centre of Research Excellence in Cerebral Palsy (#1057997). The authors declare no conflicts of interest with respect to the research, authorship, or publication of this article.